I went to a doctor and he was very ... confusing? I came in, did a PFT and an MRI with/without contrast. So first, the raw numbers. My FEV1 is 25% - 32%, FVC is around 32%, BUT FEV1/FVC is 75% - 85%. They also told me I had bullous emphysema end stage, combined with idiopathic pulmonary fibrosis. They suspect the fibrosis caused the emphysema. There are also multiple multi cm holes in the lungs, the biggest one being between 7 - 10 CM.
Based off the readings and their latest MRI, my lungs look a combination of swiss cheese mixed with a very dirty, torn up used sponge. The fact they even work at all anymore is a testament to God that he can work miracles.
This also coincides with the much more severe symptoms ive been noticing. They have been very subtle but a lot of them are definitely synonymous with increasing severity. The first is hypoxia in the morning. I dont drink alcohol but i wake up with a massive hangover every day. That's assuming i wake up on time at all, a lot of times my body is too exhausted to get up before 930. Not even a year ago, i could easily wake up at 7, now its a struggle to wake up before 930. When I do wake up, i feel extremely dizzy, as if im disoriented. The last symptom is that i can almost feel like my body is eating itself. It's more noticeable in the lower lung areas, but it feels like massive abdominal soreness, combined with increasingly painful pleurisy. Walking up a flight of stairs feels like i just did a massive set of crunches.
At this point, Im not entirely too sure what can be done, or if anything can even be done at all. I've come to peace that i will most likely die at a young age. I won't let it take me down without a fight, but
deleted 0 points 1.5 years ago
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