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my prognosis from the doctor is ... i have aboslutley no idea what they were telling me.

submitted by heytheremyfriends to TellTalk 1.6 yearsOct 17, 2023 22:54:48 ago (+24/-0)     (TellTalk)

I went to a doctor and he was very ... confusing? I came in, did a PFT and an MRI with/without contrast. So first, the raw numbers. My FEV1 is 25% - 32%, FVC is around 32%, BUT FEV1/FVC is 75% - 85%. They also told me I had bullous emphysema end stage, combined with idiopathic pulmonary fibrosis. They suspect the fibrosis caused the emphysema. There are also multiple multi cm holes in the lungs, the biggest one being between 7 - 10 CM.

Based off the readings and their latest MRI, my lungs look a combination of swiss cheese mixed with a very dirty, torn up used sponge. The fact they even work at all anymore is a testament to God that he can work miracles.

This also coincides with the much more severe symptoms ive been noticing. They have been very subtle but a lot of them are definitely synonymous with increasing severity. The first is hypoxia in the morning. I dont drink alcohol but i wake up with a massive hangover every day. That's assuming i wake up on time at all, a lot of times my body is too exhausted to get up before 930. Not even a year ago, i could easily wake up at 7, now its a struggle to wake up before 930. When I do wake up, i feel extremely dizzy, as if im disoriented. The last symptom is that i can almost feel like my body is eating itself. It's more noticeable in the lower lung areas, but it feels like massive abdominal soreness, combined with increasingly painful pleurisy. Walking up a flight of stairs feels like i just did a massive set of crunches.

At this point, Im not entirely too sure what can be done, or if anything can even be done at all. I've come to peace that i will most likely die at a young age. I won't let it take me down without a fight, but


33 comments block


[ - ] Trope 8 points 1.6 yearsOct 17, 2023 23:25:36 ago (+8/-0)

Fuck their expensive measuring devices and ability to create a name for every manifestation of inflammation.

Eat beef every day until you are healed. Salt to taste. Get plenty of sun and don’t burn yourself. Move.

[ - ] heytheremyfriends [op] 2 points 1.6 yearsOct 18, 2023 00:14:06 ago (+2/-0)

i wonder if they get paid to come up with new scary names for this crap. Im sure they day would come when the disease would eventually worsen. The prognosis for these conditions is usually atrocious due to all the underlying comorbidities that can kill you

[ - ] I_am_baal 0 points 1.5 yearsOct 18, 2023 19:10:04 ago (+0/-0)

Try fasting too, 2-5 days at a time, find your sweet spot. That fixes all sorts of shit. And eat nutritious as fuck food; beef and salt is a good recommendation, but we're all a little different. Just pay attention to how your body reacts, and kick all of the processed junk out of your life.

BPC-157, TB500, and TA-1 are also all worth looking into. They're peptides. The first two are frequently used in combination, known as the "wolverine combo" for it's incredible healing properties. People often heal soft tissue injuries that would require surgery otherwise. TA-1 I'm a little less familiar with, but it interacts with the immune system. If there's some subversive kike infection going on in there or an auto-immune problem, TA-1 might help.

[ - ] deleted 6 points 1.6 yearsOct 18, 2023 00:09:08 ago (+6/-0)*

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[ - ] heytheremyfriends [op] 0 points 1.6 yearsOct 18, 2023 00:15:38 ago (+0/-0)

they said no to lung surgery already due to diffuse nature, cant get a transplant with vax so that's out. Pulomonary rehab was useless but theyh loved billing my insurance, and i dont want to get overly dependent on a tank

[ - ] deleted 1 point 1.6 yearsOct 18, 2023 00:18:33 ago (+1/-0)*

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[ - ] heytheremyfriends [op] 3 points 1.6 yearsOct 18, 2023 00:21:30 ago (+3/-0)

most transplant centers want full vax compliance and stuff before being admitted, including for COVID. Not happening

[ - ] deleted 4 points 1.6 yearsOct 18, 2023 00:26:19 ago (+4/-0)*

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[ - ] Hobama 1 point 1.5 yearsOct 18, 2023 11:25:06 ago (+1/-0)

Just fake it. What do you have to lose? Its just a shitty piece of paper

[ - ] I_am_baal 0 points 1.5 yearsOct 18, 2023 19:13:28 ago (+0/-0)

Not all states have databases for their vax cards. I don't remember them off-hand, but you should be able to create a fake vax card if you need one.

[ - ] observation1 3 points 1.6 yearsOct 17, 2023 23:26:32 ago (+3/-0)

what youve been doing hasnt prevented what you got, maybe worth trying something new

Did you work with asbestos when you were younger?

ive read fasting for 36 hours (in one duration just drinking water), twice a month or more, while supplementing with serrapeptese can regrow anything. Its an enzyme, they didnt even know about it until 1972.

Serrapeptase is used in clinical practice to get rid of slime and mucus, sticky deposits, and plaques inside blood vessels. Cuts inflammation in half.

https://invidio.us/watch?v=QG9qTD4heK8

[ - ] canbot 0 points 1.6 yearsOct 17, 2023 23:40:50 ago (+0/-0)

I don't know if all the links are the same, but I followed one and got a video that is clearly bullshit.

First clue is he refrences "several studies" but doesn't talk about a single one. Does not talk about how it is supposed to work. And does not name any of them.

The second clue is he claims people write in to him to tell him that it worked. People generally don't do that. This is the epotome of hearsay and completely unverifiable and also removes any possibility of followup questions, and if a hole is found in any of the stories he escapes accusations of being a liar by simply saing that is what he was told and is not reappnisble for any lies. That is tha hallmark of snake oil bullshit. And he goes on and on with that shit until I stopped watching.

[ - ] observation1 2 points 1.6 yearsOct 17, 2023 23:45:35 ago (+2/-0)

By the time it took you to write that you could have spent half on your own volition, at whatever verification method of your choosing.

[ - ] SilentByAssociation 2 points 1.6 yearsOct 18, 2023 04:56:02 ago (+2/-0)

Beef lung may be worth considering:
https://ancestralsupplements.com/products/grass-fed-beef-lung-w-liver-by-ancestral-supplements-1

Listening to Dr. Anthony Chaffee may also prove to be beneficial for you.

I searched hypoxia and pleurisy Earth Clinic and it didn't disappoint. I'll share the links if you're interested.

Keep your head up.

[ - ] HonkyMcNiggerSpic 2 points 1.6 yearsOct 17, 2023 23:02:16 ago (+2/-0)

damn dude. Sounds almost like Tuberculosis. Hope you get better.

[ - ] TheYiddler 1 point 1.6 yearsOct 18, 2023 05:42:10 ago (+1/-0)*

What is your occupation? Your diagnosis suggests inhaled contaminants, which are still there preventing healing. Or the exposure has been prolonged over a few years.

Identifying the cause is vital to ensure exposure stops and may suggest an Avenue of treatment.

[ - ] Belfuro 1 point 1.6 yearsOct 18, 2023 04:21:56 ago (+1/-0)

Question. Have you had many teeth pulled or root canals?

I heard a theory.

But yes go carnivore diet and exercise.

[ - ] alolanpikachu2 1 point 1.6 yearsOct 18, 2023 08:58:38 ago (+1/-0)

What is the theory? I had two wisdom teeth pulled, the lower one was pushing on a molar. I was told the molar has a cavity but I haven't been back because I don't want the toxic filling.

[ - ] olinneserpona 1 point 1.5 yearsOct 18, 2023 12:20:46 ago (+1/-0)

They still use mercury fillings where you live??

[ - ] Belfuro 0 points 1.5 yearsOct 18, 2023 21:47:03 ago (+0/-0)

See above if interested

[ - ] deleted 1 point 1.6 yearsOct 18, 2023 10:11:07 ago (+1/-0)

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[ - ] observation1 1 point 1.5 yearsOct 18, 2023 18:03:46 ago (+1/-0)*

not op but chiming in. after They removed your tooth where the root canal was did they spend time scraping your jaw clean? Or did they just kind of suck the blood out? After, did they just leave the tooth out, or did you get an implant?

Typically a root canal forms into an abscess which is basically infected bacteria puss and you cant feel it because your nerve was removed. But you might be in luck if they already removed that tooth, albeit an implant represents same danger. The abscess sits there fucking you up over decades.

I recommend you watch banned documentary "root cause" was once on netflix.

You basically need a dentist who has a beam scan xray machine (most dont) to find out if have abcess but start with the documentary. Ignore shit you see online. You wont regret having watched it

[ - ] Belfuro 0 points 1.5 yearsOct 18, 2023 21:46:06 ago (+0/-0)

Basically the body has an electrical circuit. The muscles are the generators for it.

The circuitry for each region, organ, passes through the nerves in teeth.

The theory is that teeth are basically fuses.

As long as cells get the right voltage, that is pH level, they can self heal

Rotting or missing teeth disrupts the circuit.

If interested you can see which circuit for your failing body part goes through which tooth and if that lines up with your dental work.

[ - ] deleted 1 point 1.6 yearsOct 18, 2023 01:45:30 ago (+1/-0)

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[ - ] deleted 1 point 1.6 yearsOct 18, 2023 09:43:14 ago (+1/-0)

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[ - ] chump 1 point 1.6 yearsOct 17, 2023 23:25:08 ago (+1/-0)

Try to stay positive, and hang in there brother goat. I will pray for you.

[ - ] oppressed 0 points 1.5 yearsOct 18, 2023 13:25:33 ago (+0/-0)

the solution is to put it in Christ's hands and trust in His timing and will to be done

[ - ] oppressed 0 points 1.5 yearsOct 18, 2023 13:24:30 ago (+0/-0)

how did you get this problem? did tobacco contribute?

[ - ] deleted 0 points 1.5 yearsOct 19, 2023 00:09:08 ago (+0/-0)

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[ - ] deleted 0 points 1.5 yearsOct 18, 2023 11:45:16 ago (+0/-0)

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[ - ] heytheremyfriends [op] 1 point 1.5 yearsOct 18, 2023 12:41:16 ago (+1/-0)

The problem is most fibrotic and emphysematic people have exponential worsening, it's not linear. As the lower floor of FEV1 goes to shit, the upper floor of co morbidities increases. 50% lung volume isn't bad, but when 20% is considered death/cardiac failure level, losing 4% a year increases the chances of death significantly

[ - ] deleted 0 points 1.6 yearsOct 18, 2023 00:58:22 ago (+0/-0)

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[ - ] Hobama 0 points 1.5 yearsOct 18, 2023 11:26:10 ago (+0/-0)

Good shit. You should make a post about these.

[ - ] SumerBreeze 0 points 1.6 yearsOct 18, 2023 00:51:46 ago (+0/-0)

Are you sleeping in a well-ventilated area? Do you have fresh air from the outside flowing during your sleep?

[ - ] StealthNinjaTaliban 0 points 1.6 yearsOct 17, 2023 23:49:09 ago (+0/-0)

Sad for you.

[ - ] canbot 0 points 1.6 yearsOct 17, 2023 23:47:35 ago (+0/-0)

What does "not going down without a fight" mean to you?

Are you simply going to go from doctor to doctor looking to be saved?

Do you have any interest in trying to create an artificial external lung? That is a project I bet a lot of people would be interested in joining. If you are motivated enough to spearhead something like that you could get funding, set up a lab, attract college students who need a dissertation and experience.

I'm not a college student, but I would deffinitely join the project.

[ - ] DestroyerofSquirrels 0 points 1.6 yearsOct 17, 2023 23:16:48 ago (+0/-0)

Fuck, stay strong brother.